Thursday, November 26, 2009

Yes, I am pissed at the media this evening

Stop fricking scaring everyone about the H1N1 vaccine! It's not a big conspiracy, even though people are making money (because that's what drug companies do), and it's not the vaccine's fault that some people don't know what they're allergic to! Drug allergies happen. It's tragic, but it happens.

It doesn't matter if your article is balanced, if the headline scream it'll kill you, that's what people remember.

Oh, and boo freaking who to the people who have a bit of soreness, tiredness, or sniffly noses afterward. I would rather have had the stiffness, and sniffly nose that 7.5 weeks of this shit. Pneumonia, coughing, fever, soreness (way worse than from the bloody shot, I bet) and swelling around the heart is in a fair trade off. Wait, you know another term for swelling around the heart -- or at least what it would've been called if it had gotten any worse? It's called congestive heart failure. Take your stuffy noses and shove it.

For those who don't get the shot, it is totally your choice. It's not a fricking badge of honour to show you're Toughy McToughypants, or look down on the people that do get the shot.

Finally, to the "it's just the flu, suck it up" people: learn your history.

Saturday, November 21, 2009

All right, this is long enough

46 days (all inclusive) since it was suggested (by suggested, I mean pretty much told by a really awesome secretary) to go home and get well, here I am, still at home.


Well, technically, not at home -- at my family's, but same difference.


Several doctor's appointments after my last blog post, I may finally see the end of this thing. All right, not the end, but a light at the end of the tunnel.


First and foremost, my pneumonia, and cough, have cleared up, finally. My fever is not longer all over the place, but a very small low-grade one. My voice is back for casual conversations, but I can't project worth anything.


The biggest problem, are my headaches and fatigue. Both are lingering effects of the nasty sinus infection, and the complete body-battering given to me by the H1N1.

At my next appointment, on Tuesday, I'm finally going to discuss heading back to work, half-time, if the fever remnants are finally gone. Both my union and my health and wellness (and my family) don't want me any where near the petri dish of my workplace until the fever is gone. In all honesty, as frustrated as I am with not working, they're right. Anyone who has ever worked in a school knows exactly how unclean those places are. I don't think there's enough anti-baterial agent in the world just to get the second floor of mine clean.


Interestingly enough, after some examination, and frustation over losing a huge number of sick days, over something I picked up at work, there is no recompence for me. Doctors can't sign off that this was a workplace related illness, as it can't be conclusively proven that's where I picked it up. While there is a point in that argument, I bet if every ill child was kept at home, instead of sent to work, I bet absenteeism amongst staff would be way down. Of course, this goes for the staff as well.

When I do go back, everyone, from professional, to personal, to medical, want me to start back half-time. It'll be weird for me not just to jump back into work, but with the fatigue, I know I'm not capable of it. So, opnce back half-time, the debate will be when to head back full time.


I'm all for the traditional work ethic, but there comes a point that one person's desire not to miss work, (whether it be a staff member or parent not able to stay home) puts everyone else at risk.

I'm not one to usually comment on specific press stories, but there has been a slew of late with people suffering the way I am. We, as a nation, don't know what the long-term effects of something like this is. For most, it's the flu, and recovery time is standard, but for an increasing number of us, if the press is to be believed, it's more like SARS for some -- much more deadly and affecting than originally thought. Well, this isn't called a pandemic for nothing.

Just this Friday, I finally received a response from my parents' MPP, who I e-mailed back in October. Unfortunately, all he could do was espress his sympathies and say he'lll pass this along to my MPP, who also happens to be the health critic.

Thus, after all of this, I'm expecting nothing from the government. Not that I expected anything to be done about little old me, but now that the clinics are emptying, and no one has shockingly died of late, all the huge problems my province has had with this pandemic will be swept under the rug.

Besides, since I did send my initial complaint about how the government's dealt with this to my parents' MPP, and he can't do anything, passing it off to the woman I rejected sending it to, might, which is mathematically, if not practically possible, wind up with less than nothing being accomplished.

And I'm still just damned tired.

Saturday, November 7, 2009

My blog: misnomer?

No, I definitely had H1N1, but I'll never appear on any statistical analysis because I didn't walk into a hospital, but, as it turns out, I haven't survived it, yet.

My major complication, after the main part of the actual flu was over, was pneumonia. Correct that, is pneumonia. Well, at least the news is consistent by telling me about which body parts it hits. The news may focus on who jumped the queue and scaring everyone about the vaccine, only to then have a story on how H1N1 will kill you, your children, and probably your cat, but at least the medical data, for the most part, is consistent.

The last x-ray of my lungs showed I was getting better -- and I was really hoping to get back to work this week. Seriously, I don't think my students will remember what I look like. Plus, with being off since October 5th, I'm starting to think my brain's rotting from lack of use.

Not that my voice has improved. It's the one thing that's not come back, for any period of time. I think it ran off with my stamina. If anyone sees a voice without a body, wandering around with some stamina, send it back my way. I will need my voice and stamina before dealing with 90 students a day.

The appointment with my doctor did not go well. He needs to sign a form releasing me to return to work. I try to be rational describing the symptoms I do have, but when it comes to his stethoscope and blood tests, my reason can't win. I've backtracked. In my head, I knew this, as my fever was starting to creep up again until it was well over a degree above normal, over the previous three days. Obviously, I was still fighting some infection. Thus, he wouldn't sign even a half-time return to work form, and I'm off to see him, yet again, next Wednesday.

I have a broken internal thermostat. I always have. Though it'll keep my body consistently .4 of a degree below every other average human's, I'll feel hot and cold.

Now on round four of antibiotics, my pharmacist, and her cashier know me by name, and ask about my H1N1/chest infection. I've seen them more in the last 5 weeks than I have my whole life. This time, the drug specifically targets lung infections, but it has the unfortunate side effect of making me feel nauseous. I didn't even want to eat some pumpkin pie. If you know me personally, that will explain how nauseous I am. I pick pumpkin pie over birthday cake every year.

In short, I'm back up a couple of meds, and in temperature. I'm off even longer from work, eating up more of my saved sick days. I know I shouldn't think about work, but what happens when I go back. One co-worker joked about having "no mercy" when I return, but the joke fell horribly flat. I know how behind I'll be, even though I've had a decent, and consistent supply over the last three weeks. It was a passive aggressive comment that failed to be even slightly humourous.

I can no longer find any humour in this and I still haven't survived H1N1, yet.

Wednesday, November 4, 2009

My family and the plague

Now that there's the OMG THE PANIC!!!11!! about getting the vaccine, here I have a dilemma. First of all, do I get the vaccine, if there's any available, even though I've (probably - a phrase which here means definitely, despite the lack of official diagnosis) I've already had it.

The answer is, yes. Sure, it's selfish, as I'm probably immune, but it's the only action I can take to protest the current state of affairs.

On the other hand, this post isn't about me, it's about my family and that damned priority list.

My father has had leukemia twice; that means a permanently compromised immune system. He also had a secondary cancer, due to all the post-leukemia / immune suppressing drugs, which resulted in a 10.5 hours journal-worthy surgery and 1000 micro-stitches. My mother has had breast cancer (this past year) and is my dad's primary caregiver. That means, do they fall under the priority list? No. My parents are both over 65.

My parents, other than their problems, are healthy. Sure, it doesn't sound like that could be true, but anyone who knows my parents, knows what I'm talking about.

Now, anyone who has ever said no to my mother, has learned, the hard way -- particularly if it's about the health of my dad. Sure, it took a phone call to her MPP's office, and several phone calls to the health unit, but my mother managed to talk her way into getting the shot -- based on a one time article in the newspaper that listed immuno-compromised as a priority group, but didn't give an age limit. She was even able to get a set time, as the health unit agreed it wouldn't be productive to put my father around a bunch of people. Yay for someone reasonable throughout this crisis.

Not that this does anything for my sister-in-law. Because she's not a hockey player, or super, super rich, she won't be getting the shot any time soon, and I'm sure, in her job, she deals with way more people.

Tuesday, November 3, 2009

A new, not entirely healthy, update

Having had yet another x-ray, doctor's appointment and blood test, there is finally something to update.

Monday, I went to my doctor's, expecting to be told I was somewhat better, but not well. Unfortunately, the x-ray tech from Friday hadn't sent him the report, but from the sound of my lungs, he figured the pneumonia was clearing up. Despite that, my energy has still been at a super low level (I'm at about 40% of my usual energy) energy-wise, but it's better than my estimate last week (25%).

So, all he could do is listen to my lungs, and order up one more blood test, as we're afraid that this may have triggered a virus that's dormant in my system, Mono. (I've had it three times.) Also, there's a concern because of a symptom I've not mentioned here before -- hives and / or rashes on my extremities (particularly forearms and feet) on and off throughout this. Seriously, the itching has been really bad at times. The reason: I'm probably allergic to the H1N1. Seriously, I'm probably allergic to the virus. It's one of the reasons the doctor think I've had such difficulty. This makes the number of things I'm allergic to, to 4: cats (only with constant exposure), perfume, mold, and the H1N1 virus.

Oh, Murphy must've been having a really, really, evil day when he decided to play with me.

He's signed me out of work until Monday, hoping the test and x-ray will be normal, or close to normal.

So, my doctor called me with the report. While there is some evidence of stuff (my term, not his) still in my lungs, it's dramatically decreased. Also, the swelling around my heart is 90% gone. This totally fits in with my return to work plan next Monday. Now we just have to wait on both the specialized blood test, and plain old hey is anything up, blood test.

This week, I'm on Doctor's orders to recuperate and get my stamina back. The supply that's in for me will have to do the report cards, and any interviews still outstanding. Also, the supply will be there Monday, to help transition everything back to me. I haven't talked to Health and Wellness yet, but I'd like him to be there Tuesday too, in case my voice can't handle it. It's the one thing that really isn't getting any better. Some days, I sound like a bad cell phone advert -- one where the caller is constantly breaking up. Others, I just sound like I've aged 50 years, but I guess a month of coughing can do that.

For some stats:

Days off work: 23 (work days, if I make it back on Monday)
Vials of blood taken: 8
X-rays: 2
Days with a fever over 102: 9
Days with a fever: 13
Days with serious aches and pains: 18
Days with a seriously diminished (or no) voice: 20
Days with pneumonia: 14
Days with a cough: 22
Different medications: 6
Days I've been medicated: 23

Tuesday, October 27, 2009

My letter to my parents' MPP

Dear parents' MPP,

I have missed the last 14 days of work, because I may, or may not, have H1N1. I won't ever know, as my doctor can't treat me for H1N1, just all the symptoms.

I am writing to you for a few reasons. The first is that throughout most of my illness (after I was no longer allegedly contagious) I've been at my family home instead of at my house. The second is, once upon a time, I was your constituent. Finally, I resent being asked to fill out a form on my feelings about the current government before I finally find the teeny-tiniest comment box to get in contact with my MPP.

Here's the story of my health care disaster.

I then summarized my first blog post, so I won't repeat it here.

To everyone I've talked to during this illness, I've made the same recommendation: it's time for everyone to burden our health care system and go to the hospital. Sure, a person can try to do what the health care system would like one to do: call Telehealth, visit the family physician, etc., but that won't do anyone any good. By the time one follows that route, the person will be too far into the disease to get any real assistance from anti-virals like Tamiflu. For the past few days, I've been inundated with news about the doctor from Mount Sinai hospital who was able to get Tamiflu, and still feels terrible. Well, isn't he lucky he was in Mount Sinai, and someone of importance, so he could have the medication. I wonder how many days of work I wouldn't have missed if I had the same opportunity?

In conclusion, what I've learned is this: if you think you're coming down with with the flu, do the exact opposite of what the government tells you, and go directly to a hospital. Maybe then you can get some proper treatment, unlike me.

I also plan on having one dose of the H1N1 vaccine, as, since I've never been officially diagnosed with H1N1, I guess I should get it -- even through I wouldn't need to if I had been diagnosed with the illness. Again, this is probably the opposite of what the health care system would recommend.

I wonder what the cost analysis would be if we calculated my time off work, the cost of the supply, my 5 visits to the doctor, my two chest x-rays to check on the pneumonia, and the 6 rounds of medication I've been on? I'm willing to bet I cost the province (and myself) far more being off work for so long, than I would have if I'd just gone to the hospital.

I thought that this debacle of medical care should be brought to the attention of an elected official. Since you have been so helpful to my parents over the years, and do not ask people visiting your website to comment on the current government, I thought you would be the better option, than my own MPP.

Thank you,

Me

Sunday, October 25, 2009

Jon Stewart's Doubt Break

Okay, so Jon did this days ago, but I just found the clip I wanted now. Jon Stewart, as per usual, sum up how I feel about people scoffing at the shot.

Probably the most offensive thing I've seen online is a friend of a friend (meaning, someone on the f-list of a friend) calling people who get the shot "pussies" who can't suffer for a week.

This person goes on to brag that since he's perfectly healthy, he can handle a week of feeling poorly and move on. Yeah, well, 20 days ago, I was perfectly healthy and look at me now.

So, to show the pro side not the OMG IT MAY KILL YOU side I've been having to suffer through with the media, I felt the need to post Jon's awesome chart.

Friday, October 23, 2009

Here I am, still sick

My undiagnosed H1N1 has progressed.

I had a Chest X-ray on Monday which showed I now have the ironically named "subtle" pneumonia. It's in my left lung, and has caused some swelling of various tissues around my heart.

When I was at the Doctor's today and he's put me on another round of meds, and doesn't think I'm any better, pneumonia wise, than I was on Monday when he last listened to my lungs. If it gets worse, I will have to be hospitalized.

My doctor is frustrated because all he can treat are my complications (as it wold be too late for anti-virals) and I'm frustrated because I can't be signed off on going back to work. Strangely enough, this whole thing today made me so mad, that I've had more energy today than the last week, despite the pneumonia.

As for the news tonight, what is is telling me? It's all about the second wave of H1N1. Yeah, whatever. Like I need to hear all about what I'm going through. I have first-hand experience.

Wednesday, October 21, 2009

I think my health care system is sick

I have been sick since October the 5th. I left work on that Monday, on the orders of my favourite secretary, and told not to come back to work until I was well.

I haven't been back to work since. Knowing the mess my absence will cause, I literally cried on Monday when my Doctor ordered me off work for the entire week. If I manage to make it back to work on Monday, I will have been absent for 13 straight days.

At first, I had a fever (over 101), aches, and a headache that felt like Athena was trying to beat her way out of my head. By Wednesday, my fever was over 102, the aches were still present, and now I and developed a cough. Thing were not looking up, so I did what we're supposed to do in Ontario, and called Telehealth. They gave me several pieces of generic advice, all of which I was already doing, and then recommended I see a Doctor within 24-48 hours if I was not better. They recommended that I not go to a hospital unless I was having chest pains or trouble breathing.

I didn't make it to a Doctor until Sunday, because I wanted to drive to my emerge clinic on really quiet roads. By this point, I was still aching, my fever was still in full bloom, my voice was almost non-existent, and I was bitter because it was a holiday weekend, and I was supposed to be up north, about to celebrate my birthday.

The Doctor at the emerge-clinic was the same Doctor I had when I was 12. Therefore, I felt confident when she told me it was a sinus infection, plus a virus, was given some antibiotics and sent home. I wasn't to go to work on the Tuesday after my birthday either, since I needed some serious recovery time. When I was no better on Monday, I called Telehealth again (and they told me to get myself to a Doctor -- but again, no hospital) and reported my newest symptom, a lack of an appetite.

By Wednesday the following week, I was at my regular Doctor's, where I was given a newer, stronger antibiotic, and industrial strength cough medicine. Again, I was off until the end of the week. Luckily, my parents were home, and since the Doctor thought I was no longer contagious, I could have some help with things, since I was functioning at about 10% of my usual speed. Even my brain had abandoned me, and I wasn't understanding things I usually would, and was unable to follow most conversations. Plus, my blood pressure was lower than normal.

Finally, someone said what I'd been dreading all along: H1N1. Since my school has been allegedly riddled with it, this wasn't a surprise, but, apparently, my lack of puking and chest pain had eliminated it for all medical personnel who were not familiar with me. For my regular Doctor, who knew, while most would be puking their guts out, I just be unable to eat, and the low blood pressure, meant I probably did have the H1N1 and that I should've gone to a hospital sometime during my first week off -- a complete contradiction to my original orders from Telehealth. Yup, I was one of those people who get H1N1 with all the fun (by fun I mean horrific) complications. (Those complications being my brain being fuddled, and the continuing aching, coughing and subsequent chest infection.)

Here's the rub. Regular family physicians can't order the H1N1 test (at least, according to the doctors I've seen). Nope, only in hospital can you get tested, and that's only if they think that's the only thing wrong with you. Plus, some hospitals, I've heard from friends who are health care workers, aren't always testing anymore. Umm, how can we keep track of something that may reach epidemic proportions, if we don't test for it anymore? BC still tests and tracks H1N1, why not Ontario? Thus, even though everyone's quite sure I'm suffering the after-effects of H1N1, I'll never get that official diagnosis.

I've had a lot of time to think about this, at least, time when my brain was somewhat functioning, (I, at one point, made the horrifically politically incorrect statement to my Mother about how this must be what it's like for stupid people, every day) and realize there are a few problems here.

I caught this at work. I caught this at work because some parent didn't keep their ill child at home. Most likely, they took their kid to a Doctor, but since the child wasn't tested for H1N1, the parent thought it would be fine to send their child into a classroom with about 30 other children. Sure, my board has all sorts of plans, but they'll never have to follow through because there isn't the capability of testing if the kids go to their regular doctor. Because I've been absent for so long, I've also lost my retirement gratuity for the year. Granted, I have plenty of years left in me to work, but it irritates the hell out of me that I lose my gratuity credit for the year for something I picked up at work.

My only conclusion is this: it's time for everyone to burden our health care system and go to the hospital. Sure, you can try to do what the health care system would like you to do: call Telehealth, visit my family physician, etc., but that won't do you any good. By the time you follow that route, you'll be to far into the disease to get any real assistance from anti-virals like Tamiflu. I can't think about how much better I'd be if I'd had access to Tamiflu, because I'm trying not to dwell on the negative. It's not going to help me get well.

Thus, on Friday, I'll be at my fourth Doctor's appointment, and will have spent 13 days away from my work. I missed my long weekend getaway, had yet another crappy birthday, and have suffered far more than I've had to , all because Ontario is too damn cheap to do any proper testing.

In conclusion, if you think you're coming down with with the flu, do the exact opposite of what the government tells you, and go directly to a hospital. Maybe then you can get some proper treatment, unlike me.